Spring 2002

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Mental health

  1. Withholding Tube Feeding in a Woman with Advanced Dementia

**Benefits and burdens of artificial nutrition and hydration (tube feeding)

**Terminal dehydration

**The legal and moral aspects of tube feeding

**Withholding versus withdrawing life-sustaining treatment

**Vulnerable nursing home patients

**Do-not-hospitalize orders 

Vivian is an 88-year-old woman with advanced dementia, who lives in a nursing home. As her dementia progressed she was able to take less and less food by mouth and percutaneous endoscopic gastrostomy (PEG) was performed for the provision of total enteral nutrition and hydration. Vivian is now mute, bedridden, incontinent, and completely dependent. She moans at times, occasionally scratches herself, and pulls at her feeding tube. Wrist restraints have been applied periodically to prevent her from dislodging the tube.

Vivian was diagnosed with Alzheimer’s disease nine years ago. Except for mild hypertension and intermittent pressure sores, she currently has no other illnesses. In the past three years, however, she has been hospitalized with pneumonia on four occasions, but she improved rapidly with systemic antibiotics.

Although Vivian’s niece originally authorized the feeding tube, she is distressed at her aunt’s condition and now requests that tube feeding be discontinued, but the nursing home refuses. The niece insists, stating that her aunt had once said, “If I ever get senile, I hope they shoot me, “ and that she would never have wanted this type of treatment in her condition. The nursing home rejects that notion that this is “treatment” at all; they believe that the feeding tube is basic care that should be provided, and have a “conscience objection” to forgoing artificial nutrition and hydration. They physician sys that not to do so would amount to “starving the patient to death.” What’s more, the physician points out, the patient has hypoalbuminemia, pressure ulcers, and a susceptibility to aspiration pneumonia, making the feeding tube “strongly indicated”. 

  1. What ethical and legal differences exist, if any, between tube feeding and other medical treatments?
  2. Would it be possible to initiate artificial nutrition and hydration and subsequently decide to withdraw it?
  3. What accommodation exists for providers who hold a specific moral objection to withholding or withdrawing tube feeding?
  4. What legal protections exist for dependent institutionalized patients and how might they affect decisions for Vivian?
  5. What kind of planning could have been undertaken for Vivian in the event that she became acutely ill, requiring hospitalization?
 

From: Ahronheim JC, Moreno JD, Zuckerman C. Ethics in Clinical Practice, 2nd Edition. Aspen Publication, Maryland, 2000.



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